Clinical

Experiences of healthcare staff in cancer care for people with learning disabilities

Why you should read this article

To be aware of the negative effect of staff attitudes and values on the delivery of cancer care to people with learning disabilities

To identify the need for improved training and education to enable staff to meet the needs of people with learning disabilities in accessing cancer assessment and treatment

To recognise the importance of assessing capacity and seeking informed consent in cancer care for people with learning disabilities

 

Cancer is a leading underlying cause of death among people with learning disabilities, who are less likely to receive screening tests for the disease than those without learning disabilities. This article details a literature review that was undertaken to explore the experiences of general healthcare professionals in cancer assessment and treatment for people with learning disabilities. Two broad themes were identified: capacity and consent; and workforce and systemic factors. Issues were identified in relation to staff attitudes and values, resilience, training and education, ineffective systems for tracking populations who may require additional support, and improper application of capacity and consent legislation. Further research is required to develop and enhance services and staff experiences, to improve cancer outcomes for this patient population.

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