There is a lack of recognition by staff working in healthcare and social services that people under the age of 65 can develop dementia, according to families affected by early onset of the condition. This results in a substantial delay in referral and diagnosis, which can lead to significant family and relationship difficulties. There is also a lack of specialist advice and support after a diagnosis of young-onset dementia, which adds to feelings of distress and isolation for both the person and their family. This article, which is part of a series on dementia, explores the epidemiology of young-onset dementia as well as the assessment, diagnosis and support for younger people living with dementia. It emphasises the need for specialist services and outlines the nurse’s role in supporting families living with the effects of young-onset dementia.