<p>Kathleen Fray had Down’s syndrome and later developed dementia. Her sister Margaret had cared for Kathleen for over 30 years prior to her hospital admission, and continued to play a large part in her care right up until Kathleen’s death, four years ago (Fray 2000). ‘The nurses at both hospitals told me that they had never before nursed a patient with the combined disabilities Kathleen had developed,’ said Margaret Fray. ‘They asked me to help them, and I was there every day. I still see some of those nurses now, and they often say: “We learned from you, didn’t we?”’</p>