Why you should read this article:

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To refresh your understanding of the role of the ‘expert by experience’

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To understand the importance of nurses learning from people with lived experience

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To appreciate the challenges involved in incorporating the experience of people with learning disabilities into nursing education

‘Experts by experience’ (EBEs) have a valuable role in education and improving healthcare, while collaborative working with professionals is of increasing importance for people with learning disabilities. This literature review examines the impact that EBEs have in nurse education and learning disability care. Four themes emerged through a review of the literature – partnership, benefits, challenges and support. This review collates knowledge of how to effectively collaborate with EBEs; build partnerships based on empowerment; maximise benefits in relation to education, practice and personal development; and overcome any challenges encountered. The author also details some areas where further research is needed.